Access practical resources for daily care and emotional wellbeing.
Disease fundamentals: what it is, how it manifests and what it means for the person receiving care and the family.
Practical guide to ERT: what to expect during each infusion, possible side effects and how to prepare.
How to support an adapted exercise programme: safe routines, warning signs and collaboration with the physiotherapist.
Looking after yourself so you can look after others: burnout prevention, stress management and support resources.
Nutritional recommendations for people with Pompe: high-protein diet, dysphagia management and meal planning.